Kaela Update
** I've added a link to the right that will always go to the post on how to help us if you'd like to. That way, we can keep it updated and it will always stay up, so we'll try to mention it if we've added something new. Rachel just added some things that would really help us out and a number for her Mom, who will be acting as our "relief coordinator". Haha... I just thought of something funny: FEMOM. Get it?
I only have a minute, so I'll put pictures up later. Kaela is still doing well, but a few of the complications of being born so early are starting to show up. Here's a quick rundown:
Most frightening to us, the doctors just did an ultrasound of her head, and found a Class I Intraventricular Hemorrhage (IVH, or bleeding in the brain). They are going to monitor it closely and see if the bleeding progresses. Statistically, if the bleed stays at a class I or II then she shouldn't have long term complications. But yeah, as her parent I guess that should make me feel better than it actually does at this very moment. Here's an article with a little more on the subject if you are curious.
Her blood gases continue to be okay, but not stellar just yet. She is still breathing just with nasal oxygen, and is breathing close to room air and doing a great job of staying warm. Her little GI tract appears to be working just fine, and she continues to be receiving feedings of breast milk through a tube. She even pooped yesterday! I've never been so happy to report that.
She is having trouble regulating her blood PH, which the doctors say could be par for the course, or could indicate a trouble with her PDA (the hole in infant's hearts, more if you click here) . They are treating her with Sodium Bicarbonate, which she is tolerating well, and we'll see what happens. If it continues to be an issue, the doctors will order some tests on her heart to see if the PDA is the issue.
Kaela continues to have spells where she forgets to breathe, or her heart slows down significantly (called Bradycardia and/or Apnea), but she usually wakes up when you open the door to her isolette. This is very normal for a 27 weeker, and Christopher had lots of issues with this, but it eventually goes away as the baby matures. Even though I know all that, it doesn't make it easier to sit there and watch your kid in distress while warning lights and bells are going off on all her monitors.
Yesterday night was tough for me. Just being honest, I was pretty depressed. I know to expect that cycle now...feeling sad even when there are many reasons to rejoice, and at other times feeling on top of the world because of the everyday miracles that we witness with little Kaela and Christopher. The cycle is part of my body and mind trying to cope with everything that is going on, and it's not always something where being rational can make it go away. There will be an end to this, and we'll bring her home one day, and things could ALWAYS be worse, but that doesn't mean that right now there aren't some appropriate times to just feel down, lousy, scared, or just plain worn-out.
Still, we have lots of reasons to be thankful...the wonderful network of support we have here and from all over the world makes this not just bearable, but a testimony to the blessings of being a member of the body of Christ. And I know Kaela will be okay and some day soon come home. We love that all of you are reading and journeying through this with us, and we gain strength every day from your prayers.
On a nerdy note, I've started taking different lenses for my camera with me when I go to visit Kaela, and that always provides a little creative outlet for me. Oh, and Christopher just emptied an entire box of wet wipes all over the family room. Did I mention that we have lots of reasons to smile? =)
UPDATE: My Grandfather (Mom's Dad) has been hospitalized with a brain hemorrhage. They knew he had pressure on his brain that was causing him to lose some basic functions, and he had elected to have a surgery to relieve the pressure that involves drilling two holes in his skull. When they were preparing for the procedure, the doctors discovered a bleed in his brain that is too severe to operate on at this time. They are monitoring him as well to see what happens. I never like the "just wait and see what happens and hope it gets better" treatment. Nothing against anyone in particular, but doesn't it seem like there should just be a solution for every problem? The internet has made me impatient and unreasonable.
--Andy



